Tag Archives: Rare disease patient registry

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Role of Rare Disease Registry in Treating IPF

The Role of a Rare Disease Patient Registry in Treating IPF

Patient Registry NewsMarch 17, 2021

IPF, or Idiopathic Pulmonary Fibrosis, is categorized as a rare disease that affects approximately 5 million people worldwide. It is…

Rare disease patient registry software

The Benefits of Rare Disease Patient Registries

Patient Registry NewsFebruary 24, 2021

Today we discuss the benefits of a rare disease patient registry, which is timely as February 28th is worldwide rare…

Nurse Adding Rare Disease Patient Registry Data

3 Ways Rare Disease Patient Registries Are Used To Improve Outcomes

Patient Registry TipsDecember 1, 2020

In the past decade, rare disease patient registry software has become an integral tool for health care professionals helping patients.…