The Role of a Rare Disease Patient Registry in Treating IPF
IPF, or Idiopathic Pulmonary Fibrosis, is categorized as a rare disease that affects approximately 5 million people worldwide. It is…
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Patient Registries in Tracking COVID-19
Patient Registries in Tracking the Evolution of COVID-19 Benefits of patient registries in tracking the evolution of COVID-19 are extensive. …
The Untapped Potential of Patient Registries in Orphan Drug Research
Patient Registries in Orphan Drug Research An orphan disease is defined as a condition that affects less than 200,000 people…
The Benefits of Rare Disease Patient Registries
Today we discuss the benefits of a rare disease patient registry, which is timely as February 28th is worldwide rare…
Importance of a Cancer Patient Registry
Cancer is the most common problem in America, afflicting and killing an estimated 60, 000 people in any given year.…
Patient Registries: An Underused Tool for Medication Use Evaluation
Medication use evaluation (MUE) is a quality assurance tool that helps to review a patient’s prescription against a specific set…